ischemic colitis

[no name]

i ended up in the hospital for 3 days
will be back tomorrow
doing better about 80% there
NN

[H20shed65]

@no name

Yikes! The hospital sucks! If they can't kill you, it can't be done, so take some comfort in the fact that you're back here posting. IC doesn't normally land one in the hospital so it must have been quite severe. I'm pleases to know that you're doing better though!

Was this the first time you were admitted inpatient for this condition?

[no name]

@H20shed65
No Ive been in many times for this, its a catch 22 , when I cant keep any meds down my inr # goes below therapeutic, cant take Blood pressure meds, blood pressure goes unsafe(dissected aorta multiple areas) on top of withdrawls (thank god for the patch) so for me it can go from bad to very bad quickly
for me all that can be done is to treat the symptoms as the true source of the problem I have been told that unless it becomes a complete occlusion that no surgery or intervention on this area would be performed, Even with the incredible heart and vascular team I have ,this part of the body (messenteric artery sp?)is only dealt with in an emergency risks and outcomes are very poor otherwise

[H20shed65]

@H20shed65
No Ive been in many times for this, its a catch 22 , when I cant keep any meds down my inr # goes below therapeutic, cant take Blood pressure meds, blood pressure goes unsafe(dissected aorta multiple areas) on top of withdrawls (thank god for the patch) so for me it can go from bad to very bad quickly
for me all that can be done is to treat the symptoms as the true source of the problem I have been told that unless it becomes a complete occlusion that no surgery or intervention on this area would be performed, Even with the incredible heart and vascular team I have ,this part of the body (messenteric artery sp?)is only dealt with in an emergency risks and outcomes are very poor otherwise

Oh my goodness ! Dissected Aorta is an extremely dangerous condition, to say the least. Was this caused by a Thoracic Descending Aneurysm? And if so, how large is the aneurysm in CM?

I'm sure I don't need to tell you how critical blood pressure control is in such situations and if you are unable to ever take your BP meds orally I would consider that an emergency. Do you have a plan B with your physician in case you are unable to take your BP meds orally? If not, that should be addressed immediately as there are sub-lingual, transdermal and nitrates applied topically that can lower BP in an emergency.

Good PT/INR control is also important but in your case, better to be below than above therapeutic thresholds. A high Pro-Time number could be deadly as could elevated BP with your condition. It sounds as though you have a good team of physicians which is great but based on your description above, I can certainly see why you would be hospitalized for IC which would be unusual for most patients.

I wish you well and please keep the BP well controlled.

[no name]

@H20shed65,
Marfan
My aorta tore from the arch all the way to my groin,Ascending was repaired but was left with type B , one kidney was lost to occlusion/ clot, carotid is dissected also (Tia's)
My Inr window is very small currently at the largest point I'm at 4 Cm Dr's think ill needs another surgery in 2 yrs, by then I'm hoping it will be done endovascularly (fingers crossed)
Thank you for the kind words!
NN

[Mlmk]

@no name,
Again wow. I saw on another thread that even though you have health problems you take care of your own responsibilities. For instance keeping up on med refilling (my spouse with a PhD can't reorder his own BP med refills), getting to appointments etc. I saw this thread and I'm honestly impressed. You do indeed have some very serious health issues. Kudos to you for doing what you can! Take care of yourself. You have alot going on ( obviously huh?)

[Binky]

@NONAME I just wanted to tell you that I sympathise with you over your very severe health problems.I too admire you for taking care of your responsibilities all while you are so very sick.I hope you feel better soon & hang in there .

[H20shed65]

@H20shed65,
Marfan
My aorta tore from the arch all the way to my groin,Ascending was repaired but was left with type B , one kidney was lost to occlusion/ clot, carotid is dissected also (Tia's)
My Inr window is very small currently at the largest point I'm at 4 Cm Dr's think ill needs another surgery in 2 yrs, by then I'm hoping it will be done endovascularly (fingers crossed)
Thank you for the kind words!
NN

@no name

Ahhh..Marfan Syndrome. Ok , that makes sense . And at 4cm you certainly do have time, but again , that BP control is critical. And yes, this can typically be repaired by an Endovascular Surgeon with a stent , which, if you have additional health issues , as you clearly do, is probably a better choice surgically than the Std Open Procedure. With 1 kidney functioning, the type of vascular mapping scans with contrast required prior to surgery can be problematic.

I was with my MIL in 2009 at Johns Hopkins when she had Endovascular repair of a descending aortic thoracic aneurysm of 6.5cm as well as an abdominal aneurysm ! She is a stage IV renal patient but they we're able to ameliorate the potentional kidney damage from the required scans w/contrast with Sodium Bi-Carb of all things!

Her creatinine clearance was actually BETTER when she left Hopkins than when we got there! They are truly amazing and Jim Black , her surgeon, was outstanding ! Go Hopkins! ( My Alma Mater!)

It was an arduous process for all involved but she had an enormous number of co-morbidities going in and she was also 80 years old! She made it through( 3 months later!) with flying colors--As shall you!

All the Best! I wish you well!

[no name]

@H20shed65,
Glad your mil is doing well, john hopkins is an awsome facility,
im being followed at USC the head of my team was on the discovery channel,
he invented the living lobar transplant,he also did swarzennegers heart valves and is now cheif of surgery at Usc incredibly humble man dr V starnes
thanks for all the kind words, no matter how you look at it I see my illness as a burden to my family, and i try to do what ever i can to minimize it
@Mlmk and binky1957 thanks for the kind words ,there was a time that i was to sick to do my chores but only then i would need help ...you have to do all that you can
NN

[no name]

Had a check up today, labs almost back to normal INR is better but not where it needs to be, as soon as i heard the glove snap i knew i wasn't going to be able to avoid the one test i hoped wasn't going to happen, Just want to be sure no blood out the back side
I still laugh to this day as a friend told me why should i worry about the prostate check, its done by a computer its "digital" feeling better

[Jeremy Fisher]

@NONAME, it sounds like your body is moving in the right direction, as much as it can -- so that's good, right? I understand colitis and am glad that @H20shed65 can speak to some of the more specific issues you have. Bit over my head. Not your last post though. Sometimes I am glad to be a woman!

Digital ... computer. Funny. Good for you on getting a check up. No fun I know when one already has chronic issues.

Hope you have a nice weekend planned for yourself.