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Please have hope.
I take Mycophenolate.
It is true that Mycophenolate (Micophenolic acid) may increase the risk of developing certain types of cancer, including lymphoma (a type of cancer that develops in the lymph system) and skin cancer. Plan to avoid unnecessary or prolonged exposure to real and artificial sunlight and light therapy and to wear protective clothing, sunglasses, and sunscreen. This will decrease your risk of developing skin cancer. Call your doctor if your son experiences any of the following symptoms: pain or swelling in the neck, groin, or armpits; a change in the appearance of a mole; skin changes; or sores that do not heal.
But believe me; the doctors would not have prescribed Mycophenolate had it not been absolutely necessary. When the potential benefits outweigh the risks, consuming such drugs is suggested.
I am a kidney transplant survivor. I take very strong drugs every day which can cause multiple problems. But these drugs are also the reason why I am alive! So, you see my point....
It seems that your son is suffering from membranous nephropathy which is why the doctors prescribed immunosuppressants. There is some evidence to suggest that 'damping down' the immune system may halt or moderate the damage being done to the glomeruli , and so prevent the disease from progressing to cause kidney failure. The commonest drugs used are cyclophosphamide, chlorambucil, and cyclosporin.
It is true that most children "outgrow" this disease by their late teens with no permanent damage to their kidneys. However, his case may also deteriorated (I don’t mean to scare you, but you also need to be prepared).
Please continue the drug regime his doctors have recommended.
Good Luck!
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